Welcome to my blog!!
Here I would like to share my experiences of having & coping with CFS/ME & how I am trying a strict diet to help reduce/eliminate some or all of my symptoms. It is my last hope as nothing else works for me.

If you are reading this for the first time you are best starting at the beginning using the Chapters in the side bar (or go to the oldest post & work your way back)

Please feel free to comment & share your thoughts & stories about CFS/ME (or anything else for that matter!)

I will be updating this on a regular basis so please keep popping back, become a follower or subscribe to keep up to date!

I AM NOT A HEALTH EXPERT & I AM ONLY GIVING & USING INFORMATION FOR THE PURPOSES OF SHARING MY EXPERIENCES

Wednesday, 4 November 2009

Update & Oscar's new friend!!


lol poor Oscar has to have a stone dog to keep him company...well actually he's ontop of a piece of shelf to stop Oscar going into his run because he's escaped twice now both lucky escapes from the dog. He's a little monkey!

Update: Well what a day! Can't really go into detail at the moment but will fill you in properly soon.
Went to docs this morning & he thinks my allergies have flared up hence the sneezing etc so I'm on antihistermines again & another spray. Also I don't need the B12 injection anymore which is good because it is normally a life long thing but I'm slap bang in the middle of the range now so YEY!

Got the Lymes test back which was negative as suspected. Discussed a bit with docs about antibiotics usually improving symptoms but I've had lots & lots & don't ever remember feeling better in fact I felt worse most the time so not sure what to do now?? Could I have Lymes still or do I accept its just ME?

Feeling really quite crap today, ill, tired, head ache, aching neck plus the added stress of visitations which I will tell you about at a later date. Needless to say though I am not best pleased with the reason for the visit, but again they were lovely & very understanding.

Can I just say also I am really sick of people staring at me when I park in a disabled bay. I feel like a need a T-shirt making or a sign in my car. I know, I know I shouldnt let what other people think & do bother me but it is SO hard especially when people you think are close to you stab you in the back.

Ok enough misery for today. I think I need to start a blog asking permission to do stuff before I do it & permission to have a small amount of life because people don't seem to want to let me have what little I have.




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Tuesday, 27 October 2009

Help!!

I've received another letter saying I'm getting a home visit AGAIN next week.
Does anyone know if it'll be a follow up from last time or something else?

As if I didn't already feel shit enough. I've had 3 really crap weeks. I've just come on my period today 5 days late & feeling really crap about not being able to have a baby, to then get home to another f*ck*ng letter for another f*ck*ng home visit. Sorry for language but I'm so not coping well I feel totally stressed out about it. To cap it all they're coming on the day I'm seeing the Docs & having my B12 injection which I don't want to be changing.

OH FOUR FOOT SNAKES!!!!!

Friday, 9 October 2009

Update & ME/CFS news links


Introducing Rudy Reindeer!


Hi! I'm still about honest!!
Positives:
I've been picked as one of the 5 Daisy & Dandelion Creative Design Team members!! Whoop whoop!
I've got some Christmas digi's done....visit my blog to see them or my shop to buy them.

Negatives:
I've gone from a bad throat to a seriuously bad head cold to wrenching stomach pains & diarrhea. The stomach ache has calmed down & so had the head cold. But now the head is back.
My heads a shed & its really bugging me because I can't get anything done.
All I do is sneeze constantly & then spend half hour blowing my nose then sneeze again & so on....I now have a very sore nose...I look like Rudolph!!!


Here are a couple of links I've been sent which are quite interesting
retro virus
abnormal gene



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Monday, 5 October 2009

PLEASE HELP & VOTE!!!!

He has been nominated for his music for a local award
in the best solo artist category (category E) number 5 the boy i use to be, the link is below.
and would love if you could vote for him, please. he's just 16,and suffers with ME/CFS,this is a huge thing to be nominated, writes his own songs and music.

You can listen to his music here: http://www.myspace.com/theghostiusedtobe
and you can vote online at: http://www.portsmouth.co.uk/guidevotes quoting nuber '5. The Boy I Used To Be' in category E. best solo artist


Please help a fellow sufferer by voting!!!

Thursday, 17 September 2009

Hyper!


I am hyper at the moment, totally running on adrenal what with being excited about going to Harrogate craft fair last weekend, opening my shop & our anniversary yesterday & going away to a hotel at the weekend for my birthday. Think if I stop I'll never start again so I'll totally plumit next week!!!
Oh & I've had my hair cut today, she's a friend & comes to my house so its much easier than going to salon.

Anyways was so busy yesterday & didn't get chance to come on here to say I've opened my online shop!!

Ellephantastic Cards & Crafts Shop

I'm booked into a spa in leeds for my birthday so I'm really looking forward to that & just chilling. Hubby is also taking me shopping. Don't worry though he's planned our 2 nights away with ME in mind & lots of pacing & well timed spa treatment the works, he's been so fab!

Onto the ME side, I've finished the nasal spray the docs gave me last week. It was one of those only use or a week or it'll reverse the effects. Lets just hope they dont reverse themselves!!
Also I'm on diazapam & codine for my neck still. He said to go back if I'm no better after 2 weeks so 1 week to go then we'll see. Going to book in with my friend for another massage soon though as that helps ease it.

Went for my flu jab yesterday. Don't normally bother but with me being so badly at the beginning of the year & not being much better for the rest of it the doc said I should have it. So I did as I was told.
Got to docs yesterday & queued with all the other flu jabbers, got to my turn, she asked me my name & time of appointment & why I was having it. I obviously said because I have ME/CFS.
"Oh well thats not in the criteria you shouldnt really be here, have you had one before?"
I was not amused I said
"look I wouldnt have bothered or even given it a thought but it was MY DOCTOR who TOLD me to come & have it, I'm not here off my own back."
to that I got a load of mumbling & a jab in my arm!!

I tell you I was about to jab her in the bloody eye with it!!!!!
Arrrrggggh! Like i want to be given flu....idiot woman!!!!

Ok I'm off now got some more crafting to do while I'm feeling well enough to do it.
Probably be back next week after I get back from my birthday get away
Bye!


Tuesday, 8 September 2009

Better than I thought!!

Well the visit to the Docs went way better than I thought. It was just me being paranoid as usual!!

I've got a major concoction of drugs for my headaches, sinuses & neck problems.
I'm back again tomorrow for the Lyme disease blood test & I've got to go on 16th for a Flu jab!!

Its cost me a fortune in perscriptions again but hopefully it will give me some relief from the head aches & neck pain....so bonus!!

Interested to see what the Lyme disease results will say. Doc said it will take 8 weeks for the test results to come back & he was very positive about me having the test done, which was good.

Told him about the benefit fraud thing & that I am very low at the moment. My sleep is all mucked up & I've not been sticking to my diet, mainly because it has just been impossible for me to do what is needed to stick to the diet in order to eat!

Its been a case of eat none diet food or starve.....so I opted for the none diet food!


Going to the docs...

I'm going to the doctors this aft, but now don't know why I am going. I feel I'm only going to moan at him about how I feel because there isn't actually anything they can do!

oh well....I'll go & see what he says.
Back later with the results!!